Now the wait, wait on the phone to ring....
Waiting is something that none of us want to do for almost anything in life, we are spoiled! I was anxiously waiting on the phone to ring to be able to travel and take Hope to a LLMD to get a clinical diagnosis of whether or not she has Lyme Disease. The day finally came and the receptionist called and said, "Mrs Nichols you can come on May 20th!" I was thinking but what about school, exams, then the receptionist said or the next available appointment is the middle of July! "We will be there!"
Hope and I load up travel for 5 days. (Ben had to work the business' and preach!) We arrived at the appointment on that Monday, May 20,2013, that morning I just prayed God give me the strength and the grace that I need today because I know already in my heart that I was going to hear the words, "Mrs Nichols your daughter has Lyme Disease." It is not the words that any parent ever wants to hear about their child, but at this point with hope being sick for 1.5 years and the not knowing it was if a burden had been lifted!!!! Sounds totally crazy but I felt at peace! I knew that God was there in the doctor's office, I knew that God spoke through that doctor when he was optimistic on the treatments for Hope. I knew that for the first time that one of my prayers had been answered, there is hope for Hope!
More later on what all this now means for Hope.....
Showing posts with label LLMD. Show all posts
Showing posts with label LLMD. Show all posts
Monday, May 27, 2013
God moves on our behalf even when we don't know it......
God moves on our behalf even when we don't know it......
So the search began, searching for a LLMD. You might be thinking, well what is the BIG deal, you just get out the yellow page phone app, Google your local doctors and bam there you have it! Wrong! Here is the key note about Lyme disease and pay close attention. IF you discover that tick bite right away treatment is in the 28 to 42 day range. But if you have gone for longer, months, years without a diagnosis the bacteria has grown in your body and you need treatments for months to years for recovery depending on many circumstances.
This is where the general public gets confused so easily, why? Because as creatures of habit we turn to Google and we look at the very first few sites that come up for Lyme Disease! (I am not criticizing those websites) we read the symptoms, we tend to think nothing a one time dose of antibiotic won't cure and we see the images of the bull's eye rash!
Here is where you, every family member, friend and even your enemies need a 101 lesson in Lyme Disease!
Most Lyme patients don't remember a tick bite! (remember mosquitoes and spiders carry it too!)
Most Lyme patients don't have a bull eye's rash!
Lyme can be any where in the USA!
The following is one of the best movie's for explaining Lyme Disease, how you get it, how to prevent it and what treatments may be needed and how to locate a LLMD
Under Our Skin
Keep in mind other Lyme patients have told me find a LLMD, my husband's cousin messages me on FB and ask me have I heard of Dr ____ in Birmingham, AL? I get the phone # and I call, the receptionist says, "No mam he is no longer accepting patients." I ask "What about Lyme patients?" she replies "No mam". So instead of hanging the phone up I ask for referrals. She then refers me to 3 different LLMD's and I start checking them out on the internet. They all look pretty interesting I call the first one ask some questions, call the 2nd one, and then the 3rd one I type in the last name and state that she gave me and there the doctor was on Google! I look this doctors website over, read the treatment protocol, credentials, and I call the phone # on the website. I talk to a very polite receptionist, ask questions set, and appointment and get on a waiting list. I then come back to the computer, and realize that the phone # of this doctor that I just called and the original phone # I had, does not match!!!! I use the reverse phone lookup and realize that the Birmingham receptionist gave me a phone # to a plastic surgeon, not a Lyme Doctor!!!!! BUT because the Lyme Doctor and the Plastic Surgeon had the SAME last names I found Hope's Lyme Doctor!!!
God moves on our behalf even when we don't know it......
Read more of the story....
So the search began, searching for a LLMD. You might be thinking, well what is the BIG deal, you just get out the yellow page phone app, Google your local doctors and bam there you have it! Wrong! Here is the key note about Lyme disease and pay close attention. IF you discover that tick bite right away treatment is in the 28 to 42 day range. But if you have gone for longer, months, years without a diagnosis the bacteria has grown in your body and you need treatments for months to years for recovery depending on many circumstances.
This is where the general public gets confused so easily, why? Because as creatures of habit we turn to Google and we look at the very first few sites that come up for Lyme Disease! (I am not criticizing those websites) we read the symptoms, we tend to think nothing a one time dose of antibiotic won't cure and we see the images of the bull's eye rash!
Here is where you, every family member, friend and even your enemies need a 101 lesson in Lyme Disease!
Most Lyme patients don't remember a tick bite! (remember mosquitoes and spiders carry it too!)
Most Lyme patients don't have a bull eye's rash!
Lyme can be any where in the USA!
The following is one of the best movie's for explaining Lyme Disease, how you get it, how to prevent it and what treatments may be needed and how to locate a LLMD
Under Our Skin
Keep in mind other Lyme patients have told me find a LLMD, my husband's cousin messages me on FB and ask me have I heard of Dr ____ in Birmingham, AL? I get the phone # and I call, the receptionist says, "No mam he is no longer accepting patients." I ask "What about Lyme patients?" she replies "No mam". So instead of hanging the phone up I ask for referrals. She then refers me to 3 different LLMD's and I start checking them out on the internet. They all look pretty interesting I call the first one ask some questions, call the 2nd one, and then the 3rd one I type in the last name and state that she gave me and there the doctor was on Google! I look this doctors website over, read the treatment protocol, credentials, and I call the phone # on the website. I talk to a very polite receptionist, ask questions set, and appointment and get on a waiting list. I then come back to the computer, and realize that the phone # of this doctor that I just called and the original phone # I had, does not match!!!! I use the reverse phone lookup and realize that the Birmingham receptionist gave me a phone # to a plastic surgeon, not a Lyme Doctor!!!!! BUT because the Lyme Doctor and the Plastic Surgeon had the SAME last names I found Hope's Lyme Doctor!!!
God moves on our behalf even when we don't know it......
Read more of the story....
I got to find a What? LLMD? What is that?
Once again I privately messaged friends and ministers that I knew would come before the throne of grace boldly on Hope's behalf telling them that I thought that is might be a possibility of Wilson's Syndrome of the thyroid or Lyme disease and letting them know that I had arranged several doctors appointments and was waiting on more lab reports.. The Lyme support group had told me that I needed to find a LLMD (Lyme Literate Medical Doctor) and get a "clinical diagnosis" of whether or not Lyme was present in her body. Do what? You mean to tell me you want me to drive most likely to the north eastern part of the USA to poke a needle in my daughter's arm and draw blood and send to a lab in CA to tell me IF she has Lyme? Are you crazy? More doctors to poke her,and tell her she ain't feeling the pain! blah, blah, blah..... wait, what Lyme can HIDE in your body!?!?!?!?!?!?
Lyme moves throughout a person's body and can hide from blood test! But wait Hope lives in Alabama! Yes she does! Folks most of the doctors in this whole blog except for one stated, "We don't have Lyme in Alabama". Doctors make mistakes, doctors are wrong, doctors mis-diagnosis for YEARS, otherwise why have I met several people in the past couple of weeks that reside in Alabama and have Lyme Disease? Ummmmm......
Lyme is NOT just a tick disease! You can get Lyme from ticks, mosquitoes, spiders and other flying insects. Think about it how many mosquitoes have you met that knew where the Mason Dixie line was? How many ticks have you met that knew where ALL state boundary lines were? You may think come on Sydney, you are just being foolish, think about it!
So HOW do you know if a person has Lyme disease? Read carefully and share this information with your friends.
Most Lyme patients don't even remember a tick bite!
Most Lyme patients NEVER have a bull eye's rash!
Lyme disease is in ALL 50 states and worldwide!
About 50% of Lyme patients have a FALSE negative blood test!
WAIT! What? You mean to tell me that when the nurse called me about my blood test that the test could be WRONG? Yep!
Okay so I need to find a LLMD, where the heck do ya find that?....
Read more of the story...
Lyme moves throughout a person's body and can hide from blood test! But wait Hope lives in Alabama! Yes she does! Folks most of the doctors in this whole blog except for one stated, "We don't have Lyme in Alabama". Doctors make mistakes, doctors are wrong, doctors mis-diagnosis for YEARS, otherwise why have I met several people in the past couple of weeks that reside in Alabama and have Lyme Disease? Ummmmm......
Lyme is NOT just a tick disease! You can get Lyme from ticks, mosquitoes, spiders and other flying insects. Think about it how many mosquitoes have you met that knew where the Mason Dixie line was? How many ticks have you met that knew where ALL state boundary lines were? You may think come on Sydney, you are just being foolish, think about it!
So HOW do you know if a person has Lyme disease? Read carefully and share this information with your friends.
Most Lyme patients don't even remember a tick bite!
Most Lyme patients NEVER have a bull eye's rash!
Lyme disease is in ALL 50 states and worldwide!
About 50% of Lyme patients have a FALSE negative blood test!
WAIT! What? You mean to tell me that when the nurse called me about my blood test that the test could be WRONG? Yep!
Lyme disease is known as the "great imitator". What does that mean? Folks I personally did not "get it" and understand that phrase until I have walked along side my daughter this past 1.5 years and I have been the mom to her to take care of her. Okay yeah, so? There are some days her joints hurt so bad I would think, what about Lupus? Fibromyalgia? I even had friends ask has she been tested for Multiple Sclerosis?
Perhaps the next day her abdominal pain would be so bad that I would think, what about Celiacs Disease? Or so kind of stomach intestine problem?
Then after trying to "fix" those a migraine may be next, oh but wait we had an MRI, all of the is clear, maybe it is hormonal with the thyroid off?
Yes of course what about the fatigue, but the endocrinologist said she didn't have Chronic Fatigue Syndrome!
Do you get the picture? Lyme looks like so many different illnesses! After researching and learning what little bit I have learned about Lyme disease, and the fact that it is NOT just a tick disease, I wonder how many people reading this are mis-diagnosis? IF any of those symptoms fit you, please have a Lyme test through Igenex lab in California.
There is one MAJOR difference about all of the illnesses I compared Lyme to above, the other illnesses are bad, awful, but with Lyme if you go mis-diagnosis it can be fatal if left untreated.
P.S. I am NOT affiliated with Igenex lab of California in any way, shape, form or fashion, other than sending a blood test in to save my daughter's life!
The following is a video from Igenex lab in CA, it may start off a little boring to you...but pay clost attention and find out WHY Igenex is the MOST ACCURATE for Lyme testing!
Perhaps the next day her abdominal pain would be so bad that I would think, what about Celiacs Disease? Or so kind of stomach intestine problem?
Then after trying to "fix" those a migraine may be next, oh but wait we had an MRI, all of the is clear, maybe it is hormonal with the thyroid off?
Yes of course what about the fatigue, but the endocrinologist said she didn't have Chronic Fatigue Syndrome!
Do you get the picture? Lyme looks like so many different illnesses! After researching and learning what little bit I have learned about Lyme disease, and the fact that it is NOT just a tick disease, I wonder how many people reading this are mis-diagnosis? IF any of those symptoms fit you, please have a Lyme test through Igenex lab in California.
There is one MAJOR difference about all of the illnesses I compared Lyme to above, the other illnesses are bad, awful, but with Lyme if you go mis-diagnosis it can be fatal if left untreated.
P.S. I am NOT affiliated with Igenex lab of California in any way, shape, form or fashion, other than sending a blood test in to save my daughter's life!
The following is a video from Igenex lab in CA, it may start off a little boring to you...but pay clost attention and find out WHY Igenex is the MOST ACCURATE for Lyme testing!
Okay so I need to find a LLMD, where the heck do ya find that?....
Read more of the story...
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